Enable Magazine: Understanding Marfan Syndrome
Medium/BHF: What happens when you're told that you'll need major heart surgery in your early 20s?
The Naked Scientists: A Life With Marfan Syndrome
Posability Magazine: Marfan Syndrome Awareness Month - Personal Story
Scope: A Day To Shine A Light On Rare Diseases
Limitless Travel: A Day In The Life Of A Powerchair User
Scope: Disabled Access Day - when one shop got it right
Regular writer at She Might Be Magazine
Cattitude & Co: Sex & Disability 101
The Nopebook: Online Activism isn't Lazy - It's Accessible
Bimbo Magazine: Shona Louise
KCFM: Concerns over title of latest Challenge Hull
The Guardian: Stares, Glares and Internet Dating, the harsh realities of life with a disability
The Guardian: What is life really like for disabled people?
Buzzfeed: The Chancellor suggested disabled workers had lowered UK productivity and these disabled people are very pissed off
Channel 4 News: Pre-packaged food 'vital' for some disabled people
Metro: Criticisms of prepared packaged food completely ignore the thousands of people in the UK living with a disability
The Nopebook: Stop dismissing pre-prepared food as lazy
Activity Alliance: Becoming more active
BBC Three Counties Radio: Marfan Syndrome and Blogging
In Visibility: In Visibility Today podcast
In Visibility: In Visibility Today: Disability Blogger & Activist Shona Louise
Yahoo Lifestyle: Reactions to Stephen Hawking's death slammed as 'ableist' - here's why
InvisiYouth: Spotlight Story Program Shona Cobb's Story
Quantum Rehab: Shona Louise: Changing the World at iLevel
Glamour: ASOS is Selling a Rainproof Jumpsuit Designed for People Who Use Wheelchairs
Today: The Sweet Story of how ASOS created a Jumpsuit for Everyone - Wheelchair or Not
iNews: Disabled People Like Me Are Made to Feel Selfish for Using Plastic Straws
Packaging Insights: Disability-friendly packaging solutions: Purple Tuesday UK calls for diversifying options
BroadwayWorldUK: BroadwayWorldUK's 100 People To Follow On Twitter in 2010
HMSA (Hypermobility Syndromes Association) Journal Dec 2015: Marfan Syndrome & Me
Blogosphere Magazine Issue 13 June 2017: The Importance Of Disabled Bloggers
Enable Magazine March/April 2018: Why pre-packaged food is important for the disabled community
Allied Mobility Access All Areas Spring Issue 2018: Top 10 Disability Blogs
Taking over the NHS Twitter - July 2018
Shaw Trust Disability Power 100 List 2018 - Britain's most influential Disabled people
Evening Standard - Technology changed our lives
Photo by Natasha Pszenicki
Marfan's is not a death sentence, nor is it something to be brushed away in ignorance. Success is worth the struggle. I am proud to be in this fight with you. Go Team Marf!
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