FEATURED

Below are some of the places where I've been featured, websites and magazines I've written for and work I've done to raise awareness of Marfan Syndrome!

Disability Horizons: Marfan Syndrome Awareness Month - have you heard of the condition?

Enable Magazine: Understanding Marfan Syndrome

Medium/BHF: What happens when you're told that you'll need major heart surgery in your early 20s?

The Naked Scientists: A Life With Marfan Syndrome 

Posability Magazine: Marfan Syndrome Awareness Month - Personal Story

Scope: A Day To Shine A Light On Rare Diseases

Limitless Travel: A Day In The Life Of A Powerchair User

Scope: Disabled Access Day - when one shop got it right

Regular writer at She Might Be Magazine

Cattitude & Co: Sex & Disability 101

The Nopebook: Online Activism isn't Lazy - It's Accessible

Bimbo Magazine: Shona Louise

KCFM: Concerns over title of latest Challenge Hull

The Guardian: Stares, Glares and Internet Dating, the harsh realities of life with a disability

The Guardian: What is life really like for disabled people?

Buzzfeed: The Chancellor suggested disabled workers had lowered UK productivity and these disabled people are very pissed off

Channel 4 News: Pre-packaged food 'vital' for some disabled people

Metro: Criticisms of prepared packaged food completely ignore the thousands of people in the UK living with a disability

The Nopebook: Stop dismissing pre-prepared food as lazy

Activity Alliance: Becoming more active

BBC Three Counties Radio: Marfan Syndrome and Blogging

In Visibility: In Visibility Today podcast

In Visibility: In Visibility Today: Disability Blogger & Activist Shona Louise

Yahoo Lifestyle: Reactions to Stephen Hawking's death slammed as 'ableist' - here's why

InvisiYouth: Spotlight Story Program Shona Cobb's Story

Quantum Rehab: Shona Louise: Changing the World at iLevel

Glamour: ASOS is Selling a Rainproof Jumpsuit Designed for People Who Use Wheelchairs

Today: The Sweet Story of how ASOS created a Jumpsuit for Everyone - Wheelchair or Not

HMSA (Hypermobility Syndromes Association) Journal Dec 2015: Marfan Syndrome & Me


Blogosphere Magazine Issue 13 June 2017: The Importance Of Disabled Bloggers


Enable Magazine March/April 2018: Why pre-packaged food is important for the disabled community


Allied Mobility Access All Areas Spring Issue 2018: Top 10 Disability Blogs


Taking over the NHS Twitter - July 2018

PosAbility Magazine Aug/Sept 2018 - The Power of a Chair by Pippa Stacey


Thiis Magazine Cover & Feature (Pages 10-13) - October 2018


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1 comment

  1. Marfan's is not a death sentence, nor is it something to be brushed away in ignorance. Success is worth the struggle. I am proud to be in this fight with you. Go Team Marf!

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