ABOUT


Shona Louise, a space for my thoughts, was launched in 2011 when I was just 14 years old and has quickly developed into a full time passion and vessel for conversation. Starting as a platform for beauty content, Shona Louise has developed into a disability and theatre blog over the past 9 years. It's now a space for discussions around disability and a space to share my passion for theatre.

I'm also a freelance writer with by-lines in Metro, The Independent, Posability Magazine, DigitalSpy and more and have spoken out on disability rights, accessibility and ableism within the media, both online, print, radio and on TV. I'm also a portrait, theatre and live events photographer over at Shona Louise Photography and a published author, featuring in Rife: Twenty-One Stories From Britain's Youth where I talk about what it's like growing up with a long term condition and being a young disabled adult.

You can follow me on Twitter and Instagram to keep up to date and learn more about what I do.

20 comments:

  1. Keep spreading the love for beauty :)

    plsdontstoptherain.blogspot.com

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  2. Hiya hun, are you not doing youtube videos now? When i sesrched cant find any of your videos xxx

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  3. Your skin is soooooooo gorgeous!

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  4. It's funny cause when I started reading your blog I assumed you were Irish! Just cause you name is Shona (that's Irish, right? Maybe I'm wrong!) and I don't you, you kind of look Irish! Haha anyway I love your blog, you are so dedicated to it!
    My best friend has scoliosis & she has had two operations meaning that she was out of school for a few months :( She is fine now (although of course her back still hurts) & hopefully she won't need anymore operations! I'm wondering will you be having the same operation in September - where you'll get metal rods in your back to help support the spine? Anyway I'm sorry that you have scoliosis and although I'll never really understand or know the pain I completely sympathise.

    Love Niamh xx

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    1. Haha, a lot of people assume I'm either Irish or Scottish as Shona are very popular names there and I have ginger hair haha :) Thank you lovely, that really means a lot!

      I will, I'll be having two metal rods and plenty of screws put on my spine! Thank you lovely <3
      xxx

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  5. So nice to meet you!
    I just came across your blog! I am now following! I look forward to keeping up and getting to know you better!

    xo
    Christina
    christinawhoblog.com

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  6. I noticed that you have lots of yummy recipes on your page and I would like to suggest you have a look at our Top Food Blogs section here: www(dot)alldishes.co.uk/top-food-blogs
    If you want to add your food blog for get more visit traffic to the list and have your recipes indexed on Alldishes.co.uk, all you have to do is follow the instructions here: www(dot)alldishes.co.uk/add-your-food-blogs

    Hopefully hearing from you soon,

    Thanks,
    Sakkarin SÂș
    info@alldishes(dot)co.uk

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    1. Thanks for letting me know about this,will think about it :)

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  7. I've just found your blog and we actually have a lot in common! I'm 16 too, I also started blogging in 2011 and I changed my blog name in April 2014 as well because I no longer liked my original! Now there's a coincidence for you haha.

    Holly | holly la beau

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  8. I got my reclining tilting powered wheelchair free via my OT on the NHS, get your gp or consultant to refer you for an assessment.

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    1. At the beginning of the year I did that, I was referred to wheelchair services on the NHS but because I could walk inside my home without assistance they said they couldn't give me a powerchair. My health has declined a lot since then though so I'm going to be referred again soon and hopefully this time they can help now that I struggle to even get around my house.

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  9. I don't have a wheelchair but want to ask a question. I have a condition where I have so many trigger points in my calves that I can barely walk from the parking lot to the store. I have to use the wheelchairs at the store, but am always feeling guilty for taking a wheelchair from someone else. I know I might need one. I didn't get therapy soon enough so now it's almost permanently in pain. My family doesn't like the idea of me being in a wheelchair, getting my own. They think its too much money for something so small. But it's not small. I literally collapse on the floor crying 10 minutes into the store, I have such bad pain I can't walk for hours if I pushed too hard. I can't walk around in a zoo or park. But I don't know how to convince them that I need it. It hurts way too much to not do it. Can I get a wheelchair for this kind of thing? I think I can, but I feel like it's not enough. If I can what would be a good wheelchair for me? I'm 280lbs so its hard to find one that can carry me. and I want one to do it myself. Can you help me?

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    1. There's no rulebook on who can use a wheelchair, they are designed for anyone that they would help. It doesn't matter whether you can't walk at all, or you can walk a lot, if a wheelchair would help in some or all situations, then you have the right to use one!

      Unfortunately I'm not an expert on all wheelchairs though, only mine!

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  10. Hello Shona,

    First of all Thank you for being so brave and sharing your story.

    My name is Louise, I’m a parent who’s daughter (11) is currently under investigation for Marfan Syndrome.
    She’s just started high school this week too.

    I can’t wait to show her you blog when she comes home ♥️

    Isabelle has all the signs of Marfan Syndrome and/or HEDS, she had to wear a heart monitor on Monday for 24 hours and will be going to genealogy next month for them to see if she has the FNB1 or changes to that gene.

    As you can see it’s kinda overwhelming me right now and my daughter is struggling to talk to me about it �� I think she’s scared to show me she’s worried. Instead she’s became very snappy with me.
    Her Doctor has said she will 100% need surgery to fix her chest it’s dipped and protruding, her spine is only slightly affected for now.
    She has all the other indicators too, the flat feet, long arms, long fingers, tall and very slender,high arch in mouth, heart palpitations, pain and discomfort especially walking, and recently sleep disturbances.
    The doctor said Isabelle has some signs of HEDS too, so we are concerned she’s got two different syndromes.

    I think when I show her your story later on it will give her some hope and see you’re not letting this hold you down.

    Isabelle is a smart young girl and once was sporty until March when we seen this change to her chest and the doctors all said no exercise.

    Do you have a specific diet requirement? Do you crave certain foods? (Only asked this because Isabelle has been doing this)

    Any advice will be greatly appreciated, as you can tell I’m just worried and also like a fish out of water.

    Hope to hear back soon. I’ll add my email if you have any info you think we will need.

    Thank you & Take care,


    -Louise x

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    1. Hi Louise! I'm so glad my blog has helped you, and I'm glad that hopefully Isabelle will be getting some answers soon!

      Hopefully I can reassure you about the Marfan/HEDS thing, if she has Marfan then it's likely that it is just Marfan because there are a lot of overlapping symptoms, HEDS is typically diagnosed once conditions like Marfan and rarer forms of EDS have been ruled out.

      As for the diet, this isn't something I've experienced or I know as being linked to Marfan, but I imagine at 11 years old she's dealing with a lot of new hormones so that potentially could be the culprit!

      You are very welcome to email me anytime with questions, shonacobb21@gmail.com

      Shona x

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