Sunday, 14 May 2017

Sunday Stories | Lauren's Traumatic Brain Injury Story

Sunday stories is a series on my blog where every week a different person talks about their condition (physical, mental etc.), shares their story and raise awareness. For the past 5 years I've used my blog as a space where I could do just that but I wanted to extend things even further to allow others to talk and raise awareness of their conditions. I'm really excited to introduce everyone to you! Today Lauren is sharing her story and journey with having a Traumatic Brain Injury , I'll pass things on to her!


Can you tell us a bit about your condition and how you were diagnosed?

I sustained a Traumatic Brain Injury in 2012. It was an unexpected brain bleed in the subdural level of my brain whilst I was skating and I was rushed to hospital unconscious and had an emergency Craniotomy. I've still had no formal diagnosis of which parts of my brain were damaged but due to the pressure caused by swelling I could potentially have universal brain damage instead of localised in just one area.

How does your condition affect you on a daily basis?

My brain injury took away everything I knew including my sense of self. On a daily basis I have to contend with PTSD anxiety, fatigue and simple things are missing like my ability to initiate and sequence as well as some asphasia (word finding issues). I also have emotional liability as a result of my brain injury so I'm not in complete control of my emotions and can cry over seemingly nothing. Everything I do has to be planned to factor in fatigue levels, I can't be spontaneous like I used to be as there's always a payoff for any energy expended. Even having conversations can be an energy zapper. I've become quite isolated since my injury.



Do you have any tips for someone who is newly diagnosed?

I would recommend lots of rest and self care. Lots of educating yourself about TBI as you don't really get told very much and try to connect with some peer support, in those early days finding someone who understands is a great weight off the shoulders.

What is one thing you would like people to remember about your condition?

TBI is misunderstood and not talked about, it's extremely common but kept very quiet. I'd like people to remember each brain injury is unique as is recovery from it and that a lot of brain injury is invisible so even though we look fine, we have so much going on under the surface to even begin to function on a daily basis. Things that most people take for granted can be a challenge for us. 

Lauren has a blog called Brain Girl and Cat where she talks about her TBI, have a read! You can also follow her on Facebook and find out more about TBI and gain support on the Headway website.
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2 comments

  1. This is a really interesting post, I had no idea how much an injury could still effect someone in so many different ways

    Mel ★ http://www.meleaglestone.co.uk

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    Replies
    1. Glad you enjoyed it and learnt something from it! x

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