Today I went for my 3 month post op appointment and after telling them about the problems I've been having they've decided it would be best for me to have a MRI scan, hopefully within the next month. They said what could be causing the pain, anything from the metalwork not being in the right place to swelling putting pressure on nerves, but they we won't know exactly what it is until I've had my MRI scan. I have to say I am pretty worried about the prospect that I might have to have another operation.
My first x-ray (early 2012 I think?) | December 2013 | March 2014
I managed to take a picture of the first x-ray I had of my spine whilst I was at the appointment, I've got pictures of all my x-rays apart from my first so now I have it I can see how my curve progressed,
Sixth Form wise we aren't really sure what is going to happen at the moment because I've missed so much work, we are looking at the possibility of not doing the exams this year, focusing on my health and just starting my education again in September.
I hate having to put a disclaimer in posts like these but I feel I have to, I'm obviously not doing these posts for sympathy and I never have done. I do these posts and will continue to in the hope that my story can help others with Scoliosis who are facing surgery or other treatments and writing about things like this help me.
Thanks for reading,
Shona x
Oh no, Shona, hope things improve! It definitely sounds like nerve damage to me :( fingers crossed the doctors find out what's causing it x
ReplyDeleteNerve damage was my first thought as well, especially as it actually started in hospital a few days after the op, not something that came on a month ago! Either that or some of the metalwork is pressing on a nerve. Thanks lovely, the MRI should reveal what is causing these problems x
DeleteEh, that doesn't sound good! Hope it does, must be horrible not knowing what's causing it! x
DeleteIt isn't fun, very frustrating! I've come this far though so can't give up xx
DeleteIt's very interesting to see the stages in your journey, sorry to hear things aren't 100%, I hope they sort it out for you and things get back to normal ASAP!
ReplyDeletebeautybyalicee ♥
Thank you lovely! Much appreciated xxx
DeleteI'm sorry to hear things aren't going too well. Hopefully they can figure things out sooner rather than later then you can get back to sixth form in September :) I hope you are ok (probably a bit of a silly thing to say though) xx
ReplyDeleteI hope so too :) definitely not a silly thing to say, I appreciate your support and despite this all I think I'm OK, good job I'm the kind of person who likes being inside most of the time haha, and thank god for online shopping! xx
DeleteHope you get your scan soon darling and whatever the problem is it can be sorted without further surgery for you, sending you massive cuddles in the mean time, and all my love <3 xxxx
ReplyDeleteThank you lovely <3 <3 <3 xxx
DeleteHope things improve soon babe! Starting back classes in September sounds like the wise move, your health comes first <3 you're a tank, you'll get there! X
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Thanks Kirsty :) That's what I was thinking, taken me a while to get used to that conclusion but taking a year out of education is only a small section out of my life and very much worth it if it means i can recovery stress free :) <3
DeleteOh dear, I hope you start to feel better soon and hopefully get to the root of the problem. It'll all be worth it in the end, keep your chin up, nothing worth having ever comes easy :)
ReplyDeletexxx
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Thanks Louise :) Very true xxx
DeleteI hope you feel better soon and they find out whats causing it sooner rather than later. My cousin suffers with scoliosis too and she is facing an operation. I think she would find your posts inspiring and comforting x
ReplyDeleteThank you Michelle! If she has any questions or just wants to chat about the operation feel free to pass my email onto her (shonacobb21@gmail.com), I know that talking to others who had had it helped me :) xx
DeleteI'm so sorry to hear you're having some problems and haven't been able to return to sixth form. I hope you get to have a scan soon so you can hopefully find out what's wrong. I've had a problem with my hip for years and finally spoke to the doctor about it a couple of weeks ago as it's been getting worse. The problem I get is a burning pain and at it's worse it doesn't matter what position I sit or lay in it just won't stop. When it was bad a few years ago it felt like pins and needles or kind of like there was little bugs crawling over my skin (a funny description I know!) I was told it's Bursitis, which is an inflammation of the pocket of fluid protecting the bone on the outside of my hip and I think it might be because I sit to that side because of my curve. I wouldn't have thought that could be what you might be suffering from at the moment, but it's possible maybe xx
ReplyDeleteThanks lovely, I've got a date for my scan now, Saturday 12th April, so a month away, dreading it but I know it will help diagnose the problems I've been having. Mine is a burning pain and I do get pins and needles sometimes, doesn't feel like bugs crawling on my skin though. Will have a little research about that. Been doing a lot of self-diagnosing haha! My Mum thinks I might have dural ectasia as the symptoms make sense and something like 70% of people with Marfans have it, MRI wouldn't show that though, you have to have a standing MRI to diagnose that! xx
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