Saturday, 21 May 2016

THANK YOU! | I'm getting my powerchair

Last night the most incredible, kind and generous thing happened. I'll give you some context first though, you probably all know that for the past 3 weeks I've been trying to raise the money to get a powerchair and up until yesterday evening I'd raised about 55% of the money needed thanks to family, friends and bloggers. This week the local paper kindly shared my story and did an article about me raising the money, I thought maybe it would bring in a few small donations here and there and I was just happy to raise some awareness. This is where things got a little crazy though, you might have already seen on Twitter!

An extremely kind woman who must live just around the corner from me saw my story in the paper and donated the remaining amount of money that I needed, nearly £900. When I found out I was crying and shaking a lot and still now I cannot believe it. I thought it would take months and months to raise the money needed but now I'll be getting my powerchair within just a few weeks. I've been talking to her via email and trying to say thank you in the best way I can but words really aren't enough so once I have my chair I'll hopefully be meeting her to say a proper thank you as her generosity will change my life.

I also want to say the biggest thank you to all of you though, other than her donation it was fellow bloggers that donated the most, nearly £1000 between you all! That is just insane and I know there has been a lot of negativity around at the moment but this just proves that together we are able to do some amazing things. I will forever be grateful for the support I have received in such a short space of time, the biggest thank you to anyone who donated or even just shared the link! I really cannot explain how much having a powerchair will change my life. I'm excited to do simple things like go to the local shop, it has been years since I've done that.

I've just got to wait for all the money to transfer, which will take about a week, and then I'll be ready to go! I'll definitely be doing a blog post when I get the powerchair so you can all see what you helped achieve. For now though, thank you. I will never be able to say it enough.

Thursday, 19 May 2016

SoundSOUL Aroma Diffuser | Review

Today's review is not of a beauty or makeup product, this post is all about a product perfect for your home. I didn't think I needed an aroma diffuser in my life, until I got one. When I first got an email about trying out this product the immediate thought that popped into my head was that I could add in some lavender oil and it would send me off to sleep nicely. This was definitely the main reason that I jumped at the chance to try this out and it's been over a month now so it's time to tell you what I thought!

Soundsoul Aroma Diffuser Aromatherapy

The SoundSOUL aroma diffuser creates a fragrant mist by the ultrasonic waves instantly vaporising the water and essential oil inside. It doesn't use any heat so nothing is being burnt making it very safe, all you have to do is plug it in and you're ready to go. It also doubles as a night light and gives you a choice of colours to pick from to light up your room, meaning you can create whatever kind of atmosphere you want.

Soundsoul Aroma Diffuser Aromatherapy

Soundsoul Aroma Diffuser Aromatherapy

I really like it's sleek design and even with water inside it's very lightweight, it also blends in well with most surroundings I'd say and if not it's small enough to keep tucked away. It's so simple to use and the instructions are easy to follow, although after using it just once I no longer needed them. It has 2 different buttons for the mist and the light so to use the light you don't have to have the mist on and vice versa. It has 3 different time settings for the mist, 60/80/120 minutes and after that time it shuts itself off. 

I've been adding lavender essential oil to mine during the evenings and not only does it leave my room smelling gorgeous but it also helps to relax me and send me off to sleep. I just need to get a few different oils for use during the day so I'm not falling asleep at 1pm! I have to say I really have enjoyed using this and will continue to use it, it would make a great addition to any home and also would make a great present as well I think. The only slightly negative thing I have to say about it is that it isn't as quiet as I expected, it isn't loud by any means but if you wanted complete silence you perhaps might not want to turn the mist on. As I say though this is a minor thing though and it is quiet, just not silent. You can find and order this on Amazon!

This product was sent to me for review purposes but this does not affect my opinion in any way and I am always 100% honest.

Can you help me get my independence back? I'm trying to raise the money to get a powerchair so I can get my freedom back and live my life like most 18 year olds do, even donating just a few pounds would make a big difference. Find out more on my GoFundMe page.

Tuesday, 17 May 2016

5 things that Marfan Syndrome has taught me

If you follow my blog and twitter regularly then you'll know that I suffer with a genetic condition called Marfan Syndrome. I won't spend ages telling you all about it but if you want to know more then there is some great information on the NHS website. It's a pretty huge part of my life and over the past 5 years (and my whole life really!) it has taught me a lot about myself and others so today I thought I'd share a little about that with you all. This is a pretty spontaneous post so it's a bit of a chatty one!

1. It's okay to look different. 
Marfan causes my arms, legs, fingers etc to be quite long and slender and also caused my scoliosis (curvature of the spine) which became quite noticeable in the year before I had surgery so I've always looked a little different to others my age. I was bullied a lot during my school years and had people telling me I had an eating disorder for many years because I quite simply just looked a little different to others because of a genetic condition. As I grew up though it became easier to ignore such comments and I began to learn that the way I looked actually had no bearing on the things that really mattered to me. It taught me that everyone looks different in their own way and I shouldn't let ignorance or silly comments get to me when there was so much more to me than how I looked.

2. You really do have to appreciate everyday.
My condition is life threatening and the potential heart complications that come with it unfortunately meant that both my uncle and grandad passed away well before their time and things like that really do make you stop and think. I'm on a lot of online support groups and FB pages for those with Marfan Syndrome and when there is an announcement that we have lost someone else to this cruel condition it makes me appreciate life even more. I have an amazing team of doctors looking after my heart and regular checks but it doesn't stop you thinking about what could happen so I do my best to take everyday as it comes and to appreciate my life as it is, even when things aren't so great.

3. Some people are very ignorant.
Being young and having a condition that leaves you in chronic pain and needing a wheelchair is a concept that a lot of people still struggle to get their head round, especially the older generation unfortunately. Every time I sit in the priority seat on a bus I fear that I'll get the usual tuts and shaking of heads from fellow passengers. When I try and explain to people that my condition can't be cured and I won't get better I get advice about how diet and exercise can change my life. Scenarios like these are so common in my life these days and people just don't seem to want to listen to me and understand why I suffer with the problems I do. I try not to let it get to me though and tell myself that it is just a lack of awareness and understanding causing these things to happen but it isn't a nice feeling when a whole bus full of people are staring at you with looks of disgrace even though I really need that priority seat.

4. But there are also some very caring people out there.
Throughout the time that I've been blogging I've been lucky enough to come across some of the most kind, caring and generous people that I know. You've been probably seen that I've been trying to raise the money to get a powerchair recently and thanks to mainly the help and support of fellow bloggers I've been able to reach the halfway point within just a couple of weeks. People that don't even know me have come together to help me become independent and it really restores my faith in humanity.

5. I'm stronger than I thought I was.
These past 3 years have been a rollarcoaster and it's all gone by in flash, I'm not too sure how I've gotten through it all and it isn't until I think about it that I realise how much has happened. 3 major surgeries,  a lot of different scans, countless hospital appointments and enough metalwork in my body to set off the detectors at airports. I won't lie, it hasn't been easy. I don't know how I come across to everyone else but I try and stay positive and not talk about the very bad days but it's tough. I am tougher because of it though, if you'd told me 5 years ago everything that I would go through I think I would go into hiding thinking that I would never make it through all that. I did though and Marfan Syndrome will always be a huge part of my life and whilst the bad days won't become any easier I will mostly certainly become stronger.

Can you help me get my independence back? I'm trying to raise the money to get a powerchair so I can get my freedom back and live my life like most 18 year olds do, even donating just a few pounds would make a big difference. Find out more on my GoFundMe page.